Keyword - Caregivers

The experiences of caring for someone with dementia and a learning disability: A qualitative systematic review.
Hughes, Michelle; Hanna, Kerry; Wiles, Akpevwoghene; Taylor, Ellie; Giebel, Clarissa
Dementia (London), Volume 23, Issue 5 (2024)
PMID: 38172089 DOI: 10.1177/14713012231225797 
Citations: -
Tags: HACAL

Do people with dementia and carers get what they need? Barriers in social care and carers needs assessments.
Giebel, Clarissa; Watson, James; Dickinson, Julie; Gabbay, Mark; Halpin, Kath; Harding, Andrew; Swarbrick, Caroline
Dementia (London), Volume 23, Issue 4 (2024)
PMID: 38429248 DOI: 10.1177/14713012241237673 
Citations: 1 (Scopus)
Tags: HACAL

A new model to understand the complexity of inequalities in dementia.
Giebel, Clarissa
Int J Equity Health, Volume 23, Issue 1 (2024)
PMID: 39138491 DOI: 10.1186/s12939-024-02245-w 
Citations: -
Tags: HACAL

The experiences and perspectives of older adult mental health professional staff teams when supporting people with young-onset dementia.
Faulkner, Thomas; Dickinson, Julie; Limbert, Stan; Giebel, Clarissa
Dementia (London), Volume 23, Issue 4 (2024)
PMID: 38441077 DOI: 10.1177/14713012241236106 
Citations: 1 (Scopus)
Tags: HACAL

'Thank goodness you're here'. Exploring the impact on patients, family carers and staff of enhanced 7-day specialist palliative care services: A mixed methods study.
Walshe, Catherine; Mateus, Céu; Varey, Sandra; Dodd, Steven; Cockshott, Zoe; Filipe, Luís; Brearley, Sarah G
Palliat Med, Volume 37, Issue 10 (2023)
PMID: 37731382 DOI: 10.1177/02692163231201486 
Citations: 1 (Scopus)
Tags: EPHC | MIDAS

Do community-based singing interventions have an impact on people living with dementia and their carers? A mixed-methods study protocol.
Polden, Megan; Hanna, Kerry; Ward, Kym; Ahmed, Faraz; Brown, Heather; Holland, Carol; Barrow, Hazel; Main, Jeanette; Mann, Stella; Pendrill, Steve; Giebel, Clarissa
BMJ Open, Volume 13, Issue 11 (2023)
PMID: 37996231 DOI: 10.1136/bmjopen-2023-076168 
Citations: -
Tags: EPHC | HACAL

Advancing pressure ulcer prevention: evaluating the impact of patient and lay carer education.
Phoong, Kar Yen; Hardacre, Charlotte Louise; Hill, James Edward
Br J Community Nurs, Volume 28, Issue Sup12 (2023)
PMID: 38019660 DOI: 10.12968/bjcn.2023.28.Sup12.S8 
Citations: -
Tags: MIDAS | MIDAS RaCES

A 3-UK-nation survey on dementia and the cost of living crisis: contributions of gender and ethnicity on struggling to pay for social care.
Giebel, Clarissa; Heath, Bronte
Aging Ment Health, Volume 27, Issue 12 (2023)
PMID: 37027794 DOI: 10.1080/13607863.2023.2197845 
Citations: 3 (Scopus)
Tags: HACAL

Developing an understanding of the risk factors for falls among adults with intellectual disabilities: a commentary.
Doherty, Alison J; O'Donoghue, Annette; Harrison, Joanna
Br J Community Nurs, Volume 28, Issue 5 (2023)
PMID: 37130713 DOI: 10.12968/bjcn.2023.28.5.238 
Citations: -
Tags: MIDAS | MIDAS RaCES

The impact of COVID-19 restrictions and care home strategies on residents with dementia as experienced by family carers in Italy.
Chirico, Ilaria; Pappadà, Alessandro; Giebel, Clarissa; Ottoboni, Giovanni; Valente, Marco; Gabbay, Mark; Chattat, Rabih
Aging Ment Health, Volume 27, Issue 3 (2023)
PMID: 35333142 DOI: 10.1080/13607863.2022.2056137 
Citations: 8 (Scopus)
Tags: HACAL

Resilience and supporting people living with dementia during the time of COVID-19; A qualitative study.
Hanna, Kerry; Giebel, Clarissa; Butchard, Sarah; Tetlow, Hilary; Ward, Kym; Shenton, Justine; Cannon, Jacqueline; Komuravelli, Aravind; Gaughan, Anna; Eley, Ruth; Rogers, Carol; Rajagopal, Manoj; Limbert, Stan; Callaghan, Steve; Whittington, Rosie; Shaw, Lisa; Donnellan, Warren; Gabbay, Mark
Dementia (London), Volume 21, Issue 1 (2022)
PMID: 34346231 DOI: 10.1177/14713012211036601 
Citations: 18 (Scopus)
Tags: HACAL

Emotional and Mental Wellbeing Following COVID-19 Public Health Measures on People Living With Dementia and Carers.
Hanna, Kerry; Giebel, Clarissa; Tetlow, Hilary; Ward, Kym; Shenton, Justine; Cannon, Jacqueline; Komuravelli, Aravind; Gaughan, Anna; Eley, Ruth; Rogers, Carol; Rajagopal, Manoj; Limbert, Stan; Callaghan, Steve; Whittington, Rosie; Butchard, Sarah; Shaw, Lisa; Gabbay, Mark
J Geriatr Psychiatry Neurol, Volume 35, Issue 3 (2022)
PMID: 33626977 DOI: 10.1177/0891988721996816 
Citations: 56 (Scopus)
Tags: HACAL

Guilt, tears and burnout-Impact of UK care home restrictions on the mental well-being of staff, families and residents.
Giebel, Clarissa; Hanna, Kerry; Marlow, Paul; Cannon, Jacqueline; Tetlow, Hilary; Shenton, Justine; Faulkner, Thomas; Rajagopal, Manoj; Mason, Stephen; Gabbay, Mark
J Adv Nurs, Volume 78, Issue 7 (2022)
PMID: 35188292 DOI: 10.1111/jan.15181 
Citations: 20 (Scopus)
Tags: HACAL

COVID-19 and community-based care services: Experiences of people living with dementia and their informal carers in Italy.
Chirico, Ilaria; Ottoboni, Giovanni; Giebel, Clarissa; Pappadà, Alessandro; Valente, Marco; Degli Esposti, Valentina; Gabbay, Mark; Chattat, Rabih
Health Soc Care Community, Volume 30, Issue 5 (2022)
PMID: 35188317 DOI: 10.1111/hsc.13758 
Citations: 8 (Scopus)
Tags: HACAL

Exploring the enablers and barriers to social prescribing for people living with long-term neurological conditions: a focus group investigation.
Simpson, Suzanne; Furlong, Moira; Giebel, Clarissa
BMC Health Serv Res, Volume 21, Issue 1 (2021)
PMID: 34774034 DOI: 10.1186/s12913-021-07213-6 
Citations: 8 (Scopus)
Tags: HACAL

What is the impact of day care on older people with long-term conditions: A systematic review.
Lunt, Catherine; Dowrick, Christopher; Lloyd-Williams, Mari
Health Soc Care Community, Volume 29, Issue 5 (2021)
PMID: 33332714 DOI: 10.1111/hsc.13245 
Citations: 15 (Scopus)
Tags: HACAL

Supporting independence at home for people living with dementia: a qualitative ethnographic study of homecare.
Leverton, Monica; Burton, Alexandra; Beresford-Dent, Jules; Rapaport, Penny; Manthorpe, Jill; Azocar, Ignacia; Giebel, Clarissa; Lord, Kathryn; Cooper, Claudia
Soc Psychiatry Psychiatr Epidemiol, Volume 56, Issue 12 (2021)
PMID: 33893821 DOI: 10.1007/s00127-021-02084-y 
Citations: 16 (Scopus)
Tags: HACAL

Formal home care use and spousal health outcomes.
Gonçalves, Judite; von Hafe, Francisco; Filipe, Luís
Soc Sci Med, Volume 287 (2021)
PMID: 34509032 DOI: 10.1016/j.socscimed.2021.114373 
Citations: 3 (Scopus)
Tags: EPHC | MIDAS

"A piece of paper is not the same as having someone to talk to": accessing post-diagnostic dementia care before and since COVID-19 and associated inequalities.
Giebel, Clarissa; Hanna, Kerry; Tetlow, Hilary; Ward, Kym; Shenton, Justine; Cannon, Jacqueline; Butchard, Sarah; Komuravelli, Aravind; Gaughan, Anna; Eley, Ruth; Rogers, Carol; Rajagopal, Manoj; Limbert, Stan; Callaghan, Steve; Whittington, Rosie; Shaw, Lisa; Gabbay, Mark
Int J Equity Health, Volume 20, Issue 1 (2021)
PMID: 33706774 DOI: 10.1186/s12939-021-01418-1 
Citations: 30 (Scopus)
Tags: HACAL

A socially prescribed community service for people living with dementia and family carers and its long-term effects on well-being.
Giebel, Clarissa; Morley, Neil; Komuravelli, Aravind
Health Soc Care Community, Volume 29, Issue 6 (2021)
PMID: 33528081 DOI: 10.1111/hsc.13297 
Citations: 10 (Scopus)
Tags: HACAL

Health Inequities in the Care Pathways for People Living with Young- and Late-Onset Dementia: From Pre-COVID-19 to Early Pandemic.
Giebel, Clarissa; Sutcliffe, Caroline; Darlington-Pollock, Frances; Green, Mark A; Akpan, Asan; Dickinson, Julie; Watson, James; Gabbay, Mark
Int J Environ Res Public Health, Volume 18, Issue 2 (2021)
PMID: 33466948 DOI: 10.3390/ijerph18020686 
Citations: 20 (Scopus)
Tags: HACAL

The potential dangers of not understanding COVID-19 public health restrictions in dementia: "It's a groundhog day - every single day she does not understand why she can't go out for a walk".
Giebel, Clarissa; Hanna, Kerry; Rajagopal, Manoj; Komuravelli, Aravind; Cannon, Jacqueline; Shenton, Justine; Eley, Ruth; Gaughan, Anna; Callaghan, Steve; Tetlow, Hilary; Limbert, Stan; Whittington, Rosie; Rogers, Carol; Ward, Kym; Shaw, Lisa; Butchard, Sarah; Gabbay, Mark
BMC Public Health, Volume 21, Issue 1 (2021)
PMID: 33879117 DOI: 10.1186/s12889-021-10815-8 
Citations: 11 (Scopus)
Tags: HACAL

"Nobody Seems to Know Where to Even Turn To": Barriers in Accessing and Utilising Dementia Care Services in England and The Netherlands.
Giebel, Clarissa; Robertson, Sarah; Beaulen, Audrey; Zwakhalen, Sandra; Allen, Dawn; Verbeek, Hilde
Int J Environ Res Public Health, Volume 18, Issue 22 (2021)
PMID: 34831989 DOI: 10.3390/ijerph182212233 
Citations: 26 (Scopus)
Tags: HACAL

Supporting access to activities to enhance well-being and reduce social isolation in people living with motor neurone disease.
Simpson, Suzanne; Smith, Sandra; Furlong, Moira; Ireland, Janet; Giebel, Clarissa
Health Soc Care Community, Volume 28, Issue 6 (2020)
PMID: 32483867 DOI: 10.1111/hsc.13049 
Citations: 9 (Scopus)
Tags: HACAL

"I just keep thinking that I don't want to rely on people." a qualitative study of how people living with dementia achieve and maintain independence at home: stakeholder perspectives.
Rapaport, Penny; Burton, Alexandra; Leverton, Monica; Herat-Gunaratne, Ruminda; Beresford-Dent, Jules; Lord, Kathryn; Downs, Murna; Boex, Sue; Horsley, Rossana; Giebel, Clarissa; Cooper, Claudia
BMC Geriatr, Volume 20, Issue 1 (2020)
PMID: 31900113 DOI: 10.1186/s12877-019-1406-6 
Citations: 36 (Scopus)
Tags: HACAL | MIDAS

Evaluating a young-onset dementia service from two sides of the coin: staff and service user perspectives.
Giebel, Clarissa; Eastham, Cassie; Cannon, Jacqueline; Wilson, John; Wilson, Janet; Pearson, Anna
BMC Health Serv Res, Volume 20, Issue 1 (2020)
PMID: 32143694 DOI: 10.1186/s12913-020-5027-8 
Citations: 16 (Scopus)
Tags: HACAL | MIDAS

Exploring the abilities of performing complex daily activities in dementia: the effects of supervision on remaining independent.
Giebel, Clarissa; Zwakhalen, Sandra; Louise Sutcliffe, Caroline; Verbeek, Hilde
Aging Ment Health, Volume 24, Issue 8 (2020)
PMID: 30990082 DOI: 10.1080/13607863.2019.1603283 
Citations: 2 (Scopus)
Tags: CLAHRC

Decision-making for receiving paid home care for dementia in the time of COVID-19: a qualitative study.
Giebel, Clarissa; Hanna, Kerry; Cannon, Jacqueline; Eley, Ruth; Tetlow, Hilary; Gaughan, Anna; Komuravelli, Aravind; Shenton, Justine; Rogers, Carol; Butchard, Sarah; Callaghan, Steve; Limbert, Stan; Rajagopal, Manoj; Ward, Kym; Shaw, Lisa; Whittington, Rosie; Hughes, Mishca; Gabbay, Mark
BMC Geriatr, Volume 20, Issue 1 (2020)
PMID: 32900360 DOI: 10.1186/s12877-020-01719-0 
Citations: 74 (Scopus)
Tags: HACAL

Stroke survivors' and carers' experiences of a systematic voiding programme to treat urinary incontinence after stroke.
Gibson, Josephine Me; Thomas, Lois H; Harrison, Joanna J; Watkins, Caroline L
J Clin Nurs, Volume 27, Issue 9-10 (2018)
PMID: 29517816 DOI: 10.1111/jocn.14346 
Citations: 8 (Scopus)
Tags: CLAHRC